The LCC Circle
We share stories, successes, and scientific insights from the world of ultra-rare diseases. Through heartfelt conversations and expert insights, we bring together families, researchers, and advocates to illuminate the path toward understanding and treating LCC/Labrune Syndrome.
The LCC Circle
What is LCC?
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Ashley
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Season 1
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Episode 1
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In Episode 1, host Holly Tinker is joined by Dr. Jamie Fraser and Ashley Dike to explore the basics of Leukoencephalopathy with Brain Calcifications and Cysts (LCC), also known as Labrune Syndrome. Together, they share what this ultra-rare disease is, how it impacts families, and why the connection between patients, caregivers, and researchers is vital to finding answers.
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