The LCC Circle
We share stories, successes, and scientific insights from the world of ultra-rare diseases. Through heartfelt conversations and expert insights, we bring together families, researchers, and advocates to illuminate the path toward understanding and treating LCC/Labrune Syndrome.
Podcasting since 2025 • 3 episodes
The LCC Circle
Latest Episodes
Brown Family -- AJ's Journey with LCC
In this episode of the LCC Circle Podcast, host Holly Tinker sits down with Danielle Brown from Rhode Island, whose four-year-old son AJ was diagnosed with Labrune Syndrome (LCC) in May 2025 after a two-year journey. Danielle opens up about AJ'...
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Season 1
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Episode 3
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17:48
Tinker/Stewart Family Spotlight Episode
In this deeply moving episode of The LCC Circle: Stories, Support, and Science, we sit down with the Tinker/Stewart family to share their journey with LCC/Labrune Syndrome — a path they never anticipated, yet now walk with extraordinar...
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Season 1
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Episode 2
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36:28